This section is dedicated to keeping you updated on research in the epilepsy world. So much about epilepsy remains a mystery. One day we hope a cure for seizures will be found. Research studies need people with and without epilepsy to help solve this complicated disorder. Please see if you can help out with any of the research initiatives below.
The Epilepsy Phenome/Genome Project, Nationwide
EPGP is a research project funded by a federal grant from the National Institutes of Neurological Disorders and Stroke to help understand epilepsy. The goals are to understand why some families have epilepsy and to help researches find more effective treatments for epilepsy. This study needs to enroll 6750 people so go to www.epgp.org to see if you or someone you know are eligible to join this landmark study. You may also contact Dr. Edward Novotny at Seattle Children’s Hospital at 206-987-2078.
Drug Trials, UW Medicine/Valley Medical Center, Renton, WA
Led by principal researcher, Dr. David Vossler of the Neuroscience Institute at UW Medicine/Valley Medical Center in Renton, WA this study is held at the Rainier Clinical Research Center also located in Renton, WA. The research studies include:
SP982 (adjunctive Vimpat for generalized-onset seizures) enrolling Fall 2012.
093-045 (monotherapy eslicarbazepine for partial-onset seizures) enrolling curently.
VX-11-465 (adjunctive anti-inflammatory medication for partial-onset seizures) enrolling currently.
People with epilepsy interested in participating in the trial should contact Carole Burton, RN or Catherine Talbot-Lawson, RN at Rainier Clinical Research Center at 425-251-1720.
Antiepileptic Drugs: Are Generics as Effective as Brand Name?
Antiepileptic drugs (AEDs) are the main treatment for seizures in people with epilepsy. The first AED, phenobarbital, was discovered in 1912 and the company that developed it gave it the brand name Luminal. Between 1938 and 2016, 25 more brand name AEDs were approved by the US Food and Drug Administration (FDA). The generic name is the chemical name for the medication. The brand name is created by the company that first discovers and patents the medication. A patent gives that company the right to be the only one that sells that drug for many years. After the patent expires, other companies can sell the generic drug. Generic drugs are usually less expensive. Today, all AEDs approved by the FDA before 2005 are available as generics.
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